Tuesday, January 3, 2012

Time. Marching on. Thank all that is holy.

By golly, is that the time?  Time to sit down and consume all my remaining outlandishly overpriced and calorically overdense foods before reentry into reality tomorrow morning?  Yes, it is time, apparently, since I sat down to blog with a crusty roll (less crusty than a few days ago) the last wad of pâté (I am so hoping Blogger can read pâté as pâté and not pate because, ooooh, ICK!) small slices of dilled Havarti, half a cheese danish and a chocolate caramel nut thingie (name of which escapes me but this goody will NOT escape me).  And an eggnog with rum, natch.  Sadly, this year I couldn't even keep up with my previously set standards for eggnog consumption because this year I was too busy to drink.  Yes, strange but true, we haven't restocked our eggnog from Costco for three weeks, and that is not like us.  Over the past few weeks I have countless times found myself failing to urinate when the urge occurred, only to realize that hours have passed before I finally decided I could pull that off.  Now you may hate me for this, and I do apologize, but I lost four pounds in December.  Before you throw something heavy at my post, do remember I am actually overweight, and fair is fair - someone has to lose pounds in any social circle because the number of pounds compounded between any group of people is a constant, shifting back and forth between the folk according to a fairly complex mathematical statement that if I revealed, you'd have to kill me, so my lips are sealed.  Will you feel better when I tell you that not one person set foot in my house over the holiday season?  Not one?  Not my sister, my niece, my aging parents, my bestie, my other lesser but still beloved friends, not even a neighbor (they left their shit on the doorstep and ran).   So I have to eat the food now, before the break ends, because no one else did.  I don't think people meant to ignore us, I think I only invited people who were unavailable, or so I like to think.  My bestie was in Puerto Rico, my aging parents are too decrepit to climb three stairs to my front door and so prefer we gather as a family at my sister's house, and everyone knows people with kids don't actually have friends. 

So what did we do from that point about three weeks ago until now, when I finally did three loads of laundry and put it away in the same 36 hour span rather than allowing it to mound on the window seat amongst the toys and handmade, glitter saturated Christmas decorations (glitter, as you may know, is Satan's dandruff, and remember the Satan / Santa conundrum, then add laundry and I think you'll see what I mean).   Well there was the shopping, and the wrapping, and the sickness, and the illness, and the wrapping, and the shopping, and the unwellness which delayed the shopping and the wrapping.  Anyway, the aging parents decided to go for broke and check into a nursing home and a hospital simultaneously two days after we had a child with a serious illness which requires the maintaining of a constant normal blood sugar barf her way through the night, Christmas night (bringing our percentage of children who barfed on Christmas to a respectable 50% of the four children in the household).  If it were me, and I were three years old, I'd be pretty upset to find vomit in my hair and my naked parents running around rapidly doing laundry and making me bathe in the middle of the night, but she handled it with all the grace a three year old can muster when she hears "good job, honey, you got it in the bucket!!" 

We did have fun.  We did have lovely gifts, some loud and some not, and some that brought great joy to their new owners.   We fully and finally realized just how much work my dear departed dog was doing to keep the floors clean - having now noticed that the rate of increased mopping is causing the kitchen floor tiles to buckle and rise up (the sort of uprising which leads to an all out revolution, eventually.  I know other parts of the house are planning insurgencies and I am turning a blind eye to the rebels, like many a colonialist before me).

The de rigueur photo post is coming . . . the ghosts of Christmas past, present, and future are coming . . . and possibly so will I when you tell me this whole rigmarole going on repeat is at least nearly one year away. 

Thursday, December 15, 2011

The one that got away, and other domestic failures


Observe, the tri-tip roast.  Notice the extra sparkles, glinting on the surface of the carefully prepared meat, perfect for a Sunday dinner?  No, those sprinkles are not a new take on an old theme (glazing) or I guess maybe they are, but not intentionally.   While this roasted at a fairly high heat, per a carefully chosen recipe from the Internet, natch, the Pyrex pan exploded.  I wish I hadn't been out shopping, as it purportedly gave out quite an unexpected BOOM when it went, which had followed a few sessions of the smoke alarms going off as the olive oil burned off the roasted root vegetables also being prepared.  Sigh.  Yes, I am that good.  I stayed away long enough to ensure my husband could get the oven cleaned up and order in pizza.  Happy Anniversary, Lord Honey!  We had actually celebrated with a date night the previous evening, so it wasn't too likely to cause marital devastation, even though we courted each other with me preparing food for him while he worked on my house for free, thus generating a perpetual expectation that I can provide a decent meal every night.  Not so, but whatevs. 

I don't have my tree.  I took last year's Christmas cards off the mantel today.  I have yet to complete the long threatened toy purge although I did at least begin.  But the middle of that project leaves things in a muddle, rather, as the 17 pieces of 17 toy sets are sorted back into a harmonious grouping of like things alike, leaving roughly 1900 pieces of toys on the floor waiting to be grouped.  I have not completed my Christmas shopping, and I have baked nary a treat for my neighbors. 

Eggnog, it's time.  Come to Mama.  Bring Captain Morgan's spiced rum, please. 

Tuesday, December 6, 2011

It was the best of times, it was the worst of times

Perhaps I shouldn't try to pretend that my life is of Dickensian proportions in any aspect, but that phrase just seems to describe the place my head goes quite frequently.  I think I might always look back on this as a time when my girls were so delightfully lovely, so amazingly situated between babyhood and childhood, so tasty they are very nearly edible, and yet, I will also look back on this month as a time of cleaning up urine with enough frequency that I think perhaps I was cut out to be a medical assistant, after all.  And I always thought I couldn't do that job!   Hannah is suddenly much more grown up now, shouting to all who will listen that she's got panties! and yet she is still so very much just a big version of a baby, being still so capable of treacherous body movements that are intended to harm the person who carries her.  If she can arch her back like that she does NOT have limited trunk control.  It takes skill to do that kind of twist out of a parent's arms while kicking maneuver, I think.  I am behind in every single area of my life.  Each and every one.  It is true that I send out quite a few Christmas cards each year, and I will do so for 2011, but that doesn't mean I have taken the cards received in 2010 off the mantel.  No, not kidding.  My friend doesn't like that I run late all the time but how I am supposed to know that I need to build time in the schedule for someone to knock her bowl of Ramen noodles (with egg, for extra glue-ability) on the floor right when we needed to get out the door.  How?  And yet I am doing something right, because the current most common phrases spoken in our house between the two girls are "you my best friend!" replied to with "you my best friend too!"  (let's ignore that it often devolves into a fight where each girls insists "NO! You MY best friend!!" emphasizing the my and completely ignoring the fact they are really in agreement but if they acknowledged that then they wouldn't have anything to fight about.)


Things of randomosity:

A dream I probably shouldn't tell you about, but I will . . .

Which had me galloping around a room, thinking I am riding a horse, then realizing I am only slapping my own ass as if I were slapping the ass of the horse I rode in on . . . and then eating my birthday cake without using my hands, possibly in the presence of a man with whom I was about to do the deed.  Some of these events have roots in history, but that doesn't mean I can explain how it all came together.

Recently, at my house . . .

My husband spent the dinner hour hogging my laptop again, looking at videos posted to YouTube of seven year old girls operating track hoe / back hoe/ big machine-thingies. I wondered how he got there and he actually started with "truck crashes"  and the internet just led him to the seven year olds driving, really.

Current trends . . .

Claire now asks that her YouTube video playlist (previously limited to Tom Petty, Nick Kershaw, Alice Cooper and the Red Hot Chili Peppers) now has expanded to more age appropriate selections such as "Mana Mana" and Claire can always get the "do do do do" just right.

Poop is now officially funny.

Tuesday, November 15, 2011

My life is out of order, so why not my blog?

I should have posted Halloween's gory, sugar-laden glory, but I haven't.  I should have memorialized the changes in the household as we swing into fall and settle into the "school year" which for all obvious reasons ought to be when we celebrate the New Year - but I haven't.  And three posts of "significance" are in the drafts folder, moldering in their significance. 

So let's just focus on this weekend past, and the development of a toddler in diapers and her metamorphosis into Undie Girl! Who wears panties!  And sometimes pees through them right into her shoes but still - panties they are and panties they shall remain, regardless of how urine soaked they may be!

I know I am lucky that my child with CP is training in a normal age range, and some of my bloggy friends will read this post with envy in their hearts and I do not blame them one tiny little bit, but I think those who don't live with CP or see Hannah tip, slip and shuffle every day and the ways in which she compensates to keep herself oriented will know how her condition makes this type of skill building more challenging than it is for typically developing kids.  My sister told me that she thought potty training was easy (yeah, I know) and she just waited until her kids were developmentally capable of doing each step on their own and then she just told them they were potty trained and it was done in a day.  My response was something like "oh dear, I've swallowed a bug . . . 'scuse me while I cough 'til I vomit so you can't tell whether I am laughing or crying" and then I explained that I'd hoped that Hannah would potty train before the point at which her size and balance would allow her onto a grownup potty without a very real possibility of doom and bloody head injuries.  So we waited a bit to push it, until her preschool teacher said she was ready to move forward.  So of course she wants to do it herself, now that she knows the joys of peeing in the toilet, and so we now have worked out that she should step onto the step stool, pivot slowly and carefully and safely to face away from the toilet, pull down the panties and pants while standing on the stool, and then sit down.  I particularly enjoy the stand up wipe maneuver she has created while standing on the step with her pants around her knees, and the shrieks of "Hannah do it!  Hannah do it!" should I try to help her get her pants up before she tumbles to the floor with an arm that doesn't do a lot to break a fall and her knees tied together.  It is nerve wracking, rather, but I haven't got another plan.  Because I want her to speak to me as an adult, I show you only the photos of the approach and the about to sit down position . . .  I'd just like to say it is a good place to have your sense of calm tested.  And I recommend not wearing the tutu.  Just sayin'.



You may not know this but I suck at mind reading, in Hannah's eyes, anyway.  Invariably I am supposed to help her, or not, and I get it wrong.  She manages to get her pants back up on her own with only a 15% angle droop on her affected right side.  I was complimented by our OT when I described how I've been coaching Hannah on getting her pants up and down by hooking the thumb and then sliding it around to the side.  But by the end of the weekend she had scratched her right leg a fair bit with the awkwardly oriented thumb sliding up and down the leg, but she did mostly handle the pants herself and I believe ultimately this will challenge and improve her right hand strength and dexterity and particularly her thumb strength in an important way - but my heart may give out before we get there if I have to watch her pull up her pants standing on that stool too many more times with her heavy little noggin (weighing more than her tiny ass, I am quite sure) just dangling out over those unforgiving tiles.  I am sure there is a mathematical equation to describe the fulcrum and whatnot of head hanging forward while butt dangle backward and tug the pants with unequal force between the sides and not apply too much force that puts the whole thing in a downgoing motion.  From my recollection of higher math and physics and how they become one in the end, I have gleaned that the equation looks something like   O(h) x WTF + zOMG    where h is Hannah and F is floor and OMG is that unreliable thumb with a curl and the directions say solve for fuckity fuck.  I think I told you I don't have a math degree, right?



I like it better when she drives.  



Someone is very, very, very close to reading. 

The confusion and excitement and whirlwind of the last couple of months can best be demonstrated by my Fall centerpiece - consisting of three miniature ornamental ears of corn, some autumn leaves collected by the girls on our many leaf walks, and a piece of rubber dog poo, to keep things in perspective.  Wanna come over for dinner?

Friday, October 21, 2011

Haiku Friday: Potty Training O My

"Don't toucha mah bum!"
She screams at me angrily.
How else can I wipe?

She wipes standing up,
does not understand dripping.
I wish that she did.

Ev'rytime she pees
she asks "school bus?" hopefully.
Connection's my fault.

I told her "big girls"
got to go on the bus MORE.
She holds me to it.

So tomorrow we
must go on the city bus
as a poor second

I have to make good
or I will be made to pay.
Three year old despot.

Friday, October 7, 2011

Blame it on Harry Potter. It's appropriate.

Often when I am avoiding something I busy myself in reading, which has become increasingly harder as my children develop more needs that must be met.  In the last four weeks I have reread all but one of the Harry Potter books and now am working through The Tales of Beedle the Bard.  When I needed one to help complete the set, and the girls and I went to the library, Claire saw that I'd found another very large Harry Potter volume, and looked me squarely in the eye and said "Daddy is not going to be pleased to see you got that, Mommy."  Horrors!  How can she (or he) have turned into the book police while I wasn't even looking?  So just exactly why am I off the blog and in the books?  I think there is something I want to write about, and think about, and process, and I am self censoring.  But not for much longer, I think.  It might just come bursting out soon.  Stay tuned. 

In the meantime - Hannah has turned into someone who goes up and down some stairs without always holding onto something for support - which both delights and terrifies me.  She is also now someone with whom one has conversations.  Her words are still second child murky, and she doesn't have Claire's startling ability to communicate at a level years above her age, but she can be well understood - and often says things that are abstract, not related to things going on in her immediate environment, and uses words I didn't know she knew.  I wish her speech were more clear, but I am so enjoying talking with her these days.  She showed me a craft she'd made in preschool today - a spider made from a piece of an egg carton saying "looka mah 'pider!"  "Oh, I love it Hannah" I respond and she looks at me with total delight and says "(s)pooky!" 


And in other news, Claire's father told her of an idea he had for something and Claire looked at him with approval and said "that's appropriate."

My girls.  I love 'em.

Monday, September 12, 2011

Please stand by . . . or, walk this way

Folks, you've been mighty patient with me, and I thank you for that.  I never finished boasting about Hannah's birthday.  I haven't yet told you of the process of closing out our case with Early Intervention and the bittersweet farewell to the occupational therapist we had for more than two years, and the sixth bureaucratic caseworker in the same span of time.  And of course, having the relationship change between our family and Michael Workman, the Angel of PT, without whose Bamboo Brace we would not be where we are today.  And then I didn't get to tell you about our preparations for kindergarten for Claire, or the choice to keep Hannah in the group of the people on the younger end of her day care class - the ones who are "not quite ready" to be a Busy Bee and so will be Big Ladybugs, at least for the time being.  And how this decision concerns me as it makes me wonder of the wisdom of keeping Hannah, with her late summer birthday, in the cohort that would be her regularly assigned class or might I, instead, hold her back a year so the physical disparities are not so great between her and her classmates and yet leaving her less intellectually challenged.  In her preschool class, no one else knows all their letters (and has done so for eight months) and yet many others can speak more clearly about the letters they do in fact know.  I haven't told you how I worry that the decision I make for this year will not bind us to a certain result in kindergarten - but the choice I make in our kindergarten year will indeed bind us for the rest of her school career.  How will I get that one right?

I also haven't told you how delightful the two girls are to be around.  Fart jokes aside, they have lovely manners and they are wonderfully loving to each other (excepting the odd and oddly lethal sounding disputes over the toy of the moment).  I think they truly miss being in the same school even though they didn't play together on a daily basis there.  Hannah was given a chance to select a sucker from a large jar as bribery for allowing a medical assistant to weigh and measure her, and she took two - so she could give one to her sister - and then wouldn't even open hers until she saw big sis later on and could present it herself.  I haven't told you how joyful Claire really is - even in the roughest moments.  Case in point - the new kindergarten schedule has us waking so, so, so early  (compared to last month, that is) and when I went to wake her she threw her arm around my neck and said "Mommy!  Mommy! Woo-woo-woo!!" (the traditional family way to praise someone about virtually anything).   At 7:40 a.m.!  I think she likes kindergarten.

I haven't told you how discombobulated I am to not have to consider the dog when I want to slip out the back door unnoticed, or I start to pour water in her bowl until I realize her bowl is no longer needed.  We failed to adequately recognize the extraordinary effort she put into cleaning the floor, and have had to increase the mopping schedule considerably and we still are not up to Sophie's standard of cleanliness.

And finally, I haven't told of Hannah's extraordinary progress in gross motor skills generally and in foot function specifically that led her treating physician to decide that she didn't need to wear an AFO, and we'll re-evaluate in six months but it looks quite as if this is a child who might not spend her childhood in braces.


And so we say goodbye to footwear like this:



And hello to cheap footwear from Target - every girl's dream.



Walk this way, please!