Thanks so so much for your comment! Adding your blog to my reader right now :o) Just looked at a few posts and already fell hopelessly in love with your Hannah! To answer your qs: we have had an MRI at 16 mos (normal) and metabolic panel (normal). Basically . . . our little girl is one complex little medical mystery ;o) Lately, I think our pediatrician is right . . . that her smooth tracking disorder (vision issue) affects her movement more than anyone, including her opthamologist, really appreciates. Everyone seems to think we'll get "there" in time, wherever "there" is. I'm trying on a daily basis to remember "there" just has to be HER best self, not some arbitrary measure of "typical" or "normal" b/c those words f'in blow. Can't wait to follow your journey!
(And we are in So-Cal, and I ASSUME she had a full metabolic workup at birth also? she was a premie, so in the NICU for 17 days).
We are on a wait list for hippotherapy - most of the places want kiddos to be at least 3 :o( We have started swimming "therapy" though and its done WONDERS for her.
Mother of two, step-mom to two more. Married. Work in the theatre of the absurd, behind the curtain, and pulling the strings. First daughter was a preemie, new Baby has MCADD, or Medium Chain Acyl-CoA Dehydrogenase Deficiency (Mighty Crappy Aggravating Disorder) and mild Cerebral Palsy, because the fun never stops around here. Foggy mind. If I wore a button it would say: Lose mind now, Ask me how! Things you might find here: bits and pieces of fluff about babies with wacky disorders, mommying, knitting very slowly, and stuff I don't say at work. If you want to send me free stuff just email me at gingerbblog at gmail.
I see Righty!!!!
ReplyDeleteLucky girl! And of course cute as h***
ReplyDeleteThanks so so much for your comment! Adding your blog to my reader right now :o) Just looked at a few posts and already fell hopelessly in love with your Hannah! To answer your qs: we have had an MRI at 16 mos (normal) and metabolic panel (normal). Basically . . . our little girl is one complex little medical mystery ;o) Lately, I think our pediatrician is right . . . that her smooth tracking disorder (vision issue) affects her movement more than anyone, including her opthamologist, really appreciates. Everyone seems to think we'll get "there" in time, wherever "there" is. I'm trying on a daily basis to remember "there" just has to be HER best self, not some arbitrary measure of "typical" or "normal" b/c those words f'in blow. Can't wait to follow your journey!
ReplyDelete(And we are in So-Cal, and I ASSUME she had a full metabolic workup at birth also? she was a premie, so in the NICU for 17 days).
We are on a wait list for hippotherapy - most of the places want kiddos to be at least 3 :o( We have started swimming "therapy" though and its done WONDERS for her.
SHE'S USING RIGHTY!!!! Great job, Hannah and parents! Isn't it amazing to see all of that hard work pay off?
ReplyDelete